Welcome to: inside (my)elofibrosis

Hear caregivers and patients living with MF share their stories, personal tips, and how they stay ahead of their disease.

This site is intended for US adults 18 years and older.

A blonde woman with a black coat and sunglasses (left) and a young woman in a brown coat and prescription glasses (right) embrace each other as they pose for a photo together at a park in New York.

Featured content

Noticing the Patterns in Myelofibrosis

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Videos

Stories

Candid photo of a woman with red hair smiling and holding a small dog outside in a yard. Her twin daughters stand on either side of her, smiling and laughing.

Battling Myelofibrosis & Finding Hope with a Bone Marrow Transplant

Video thumbnail of Dr. Michael Savona wearing a blue button up and white lab coat with a background of a road and DNA strand intersecting behind the doctor with a blue border. The video title, “Episode 2: Know Your Mutations,” is pictured to the right.

Episode 2: Know Your Mutations

Video thumbnail of doctor wearing glasses in a blue button up and dark blue bowtie with a grid background surrounded by an orange border. The video title, “Episode 1: Know Your Myelofibrosis,” is pictured on the right. DNA strands on the bottom right of the image, slightly overlapping Dr. Gerd’s body exhibits mutations including JAK2, CALR, and MPL.

Episode 1: Know Your Myelofibrosis

A collage of drawings and photos of hands hold items with a brown paper background. Items include, clockwise: a slice of yellow cake with pink icing, an empty hand, a hand holding a heart doodle, a hand holding a mug of coffee, a hand holding a notebook and pen, and a hand holding lavender.

Tips & Support for Caregivers of Patients with Myelofibrosis

Hear From Others with Myelofibrosis

A blonde woman in a black sweater, black pants, and sunglasses (right) sits beside a young woman wearing a green jacket, jeans, and prescription glasses (left) on a New York City park bench.

A blonde woman wearing a blue sweater with large white stars and prescription glasses smiles at someone off camera during an interview.

A woman with red hair wearing a red dress, jean jacket, boots, and sunglasses is surrounded by a group of female friends near a brick fire pit.

Video thumbnail of a woman with red hair in a white sweater (center-right) in the brace of another woman in a blue sweater (center-left). A woman (left) and a child (right) stand with their back to the camera in front of the embrace.

Patient Insights on Living with Myelofibrosis

Collage of foods over a pink background. The foods pictured include, clockwise: tea and ginger root labeled ‘antioxidants’, asparagus, orange slices and raspberries slices labeled ‘fruits’, sweet potatoes and rice/oats labeled ‘oats and grain’, avocado labeled ‘healthy oils’, and salmon labeled ‘fish’.

Myelofibrosis Diet Guide: Anti-Inflammatory & Best Foods

A thumbnail drawing of a doctor’s exam room.

What does Myelofibrosis (MF) Look Like?

Paper collage of a group of five faceless people, two in white lab coats, hold up another faceless person.

Coping with a Myelofibrosis Diagnosis

Video thumbnail of a man with white hair and prescription glasses with a background of notebook paper. The video title, “Episode 3: Know Your Blood Counts,” is pictured on the right.

Episode 3: Know Your Blood Counts

A video thumbnail of a woman with red hair, a blue shirt, and sunglasses gardening in a yard.

Patient Talks Symptoms of Myelofibrosis

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