A Self Portrait of Persistence

A Self Portrait of Persistence

The story of an artist with MF who refuses to settle for status quo

Welcome to inside (my)elofibrosis. Hear caregivers and patients living with MF share their stories, personal tips, and how they stay ahead of their disease.

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Stories

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When Cindy was first diagnosed with myelofibrosis, there was so much to learn

When Cindy was first diagnosed with myelofibrosis, there was so much to learn

2
min watch

Cindy discusses myelofibrosis symptoms, pain under her ribcage, and bloodwork

Cindy discusses myelofibrosis symptoms, pain under her ribcage, and bloodwork

3
min watch

Explaining myelofibrosis in an exam room

Explaining myelofibrosis in an exam room

5
min watch

Stories

A Self Portrait of Persistence

A Self Portrait of Persistence

8
min read

The mutation that changed everything

The mutation that changed everything

10
min read

Connecting the pieces of an MF care team

Connecting the pieces of an MF care team

9
min read

Dietitian recommends anti-inflammatory diets and nutrition

Dietitian recommends anti-inflammatory diets and nutrition

3
min read

Financial planning strategies for MF patients and caregivers

Financial planning strategies for MF patients and caregivers

6
min read

Help for the Helpers

Help for the Helpers

5
min read

Myelofibrosis and Mental Health

Myelofibrosis and Mental Health

7
min read

Living with Myelofibrosis

The mutation that changed everything

The mutation that changed everything

Cindy’s journey to a bone marrow transplant

10
min read

Connecting the pieces of an MF care team

Connecting the pieces of an MF care team

9
min read

Dietitian recommends anti-inflammatory diets and nutrition

Dietitian recommends anti-inflammatory diets and nutrition

3
min read

When Cindy was first diagnosed with myelofibrosis, there was so much to learn

When Cindy was first diagnosed with myelofibrosis, there was so much to learn

2
min watch

Cindy discusses myelofibrosis symptoms, pain under her ribcage, and bloodwork

Cindy discusses myelofibrosis symptoms, pain under her ribcage, and bloodwork

3
min watch

Financial planning strategies for MF patients and caregivers

Financial planning strategies for MF patients and caregivers

6
min read

Help for the Helpers

Help for the Helpers

5
min read

Myelofibrosis and Mental Health

Myelofibrosis and Mental Health

7
min read

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Understanding Myelofibrosis

Explaining myelofibrosis in an exam room

Explaining myelofibrosis in an exam room

5
min watch
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